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Towards a Rare Brain Disease Ecosystem

 Registration is closed for this event

The main purpose of Rare Disease Day is to raise awareness about rare diseases and their impact on the lives of those affected. Encouraging policy changes can influence policymakers to create policies and regulations that better address the needs of people with rare diseases, including improved access to diagnosis and treatment.  

To raise awareness on rare brain disease, this hybrid event, organised by the European Brain Council, will bring together researchers, clinicians, persons living with brain disease and industry to share their perspectives and priorities in the rare brain disease research, care, and policy space. This will result in the 2024 strategic plan for the EBC rare brain disease ecosystem. 

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Important note: please complete this registration form only if you are planning to join the event online. For in-person attendance, please contact us at

February 29th, 2024 from 09:30 to 14:00
University Foundation (Francqui Room)
Rue d’Egmont 11
Brussels, 1000